When the cardiologists at Texas Children’s read Lilly’s echocardiogram, they did not see any aortic insufficiency. This is a different finding from both of her previous studies (the one from our cardiologist in Greenville in April and the one from MUSC in May).
Given those findings, Dr. Fraser told us that he would not recommend surgical closure at this time. Our cardiologist agrees with this management plan. The problem is that not we have conflicting information and we need to make sure that we truly understand what is going on with Lilly’s heart.
Our cardiologist (Dr. Raunikar) has requested a copy of the images from the echocardiogram that was performed in Houston, and he will re-read it for himself. He also wants to see Lilly in his office next week so that he can repeat another echocardiogram.
The team in Houston was able to review the images from her first study in Greenville, and I sent copies of the images from MUSC yesterday. They will present Lilly’s case at an interdisciplinary conference on Monday, July 11. This meeting will include all of the cardiothoracic surgeons as well as many cardiologists. We are eagerly waiting to hear their formal recommendation.
Of course we are praying that Lilly will not need surgery.
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